Jake’s Ride for Dystonia Research began in 2008, after Jake Silverman, a young boy from Short Hills, New Jersey, was diagnosed with early onset childhood dystonia and underwent Deep Brain Stimulation (DBS) surgeries at Massachusetts General Hospital. Dystonia’s painful muscle spasms had forced Jake out of school and into a wheelchair. Over time, this surgery significantly restored Jake’s quality of life.
Jake is now a college sophomore, who also serves as a Team Fox junior spokesperson for dystonia on national media and speaking platforms. While he has made significant progress, his dystonia is not cured. We therefore ride for a cure not only for Jake, but for all his fellow warriors.